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| Ella Murphy |
Ella Murphy, 11, suffers from a rare neurological disease that can cause a burning sensation.
The pain can be triggered by stress or brought on by a minor injury such as a bruise, before traveling through the body.
This schoolgirl is unable to receive any hugs from her family or friends because being touched can leave her in agony.
The pain usually develops after a minor injury but the pain experienced is out of all proportion to what a person would normally expect.
To stop it from striking other areas, Ella has to ensure that she keeps moving, but at times the condition prevents her from being able to walk.
She is currently suffering from extreme pain in her ankles and has to be lifted in and out of bed, relying on a wheelchair and crutches to move around.
Little is known about what causes the disorder, but experts hope Ella will grow out of it before she reaches adulthood.
Ella lives in the village of Langport, near Yeovil, Somerset with her mother Charlotte, 44, and her father Shaun, 45, a website support technician.
Mrs Murphy, who works in a premature baby unit, said: ‘The pain can come on because she has knocked herself or it can develop by itself or through stress.
‘She has had it in a variety of places including her hips, shoulder, knees, and currently it is in her ankle so she is using crutches and a wheelchair to get around.
‘The pain can last from days and weeks to months and the only way to get through it is to make sure she keeps moving, as if she doesn’t it can spread.’
Mrs Murphy explained the condition is especially horrible as she instinctively wants to give Ella a cuddle to make her feel better, but she is unable to hug her when she has pain in her upper body.
‘I just want to take her pain away but even a hug can make it feel worse for her,’ she said.
‘She is currently using crutches and a wheelchair to get around as the pain is in her ankles so luckily I can cuddle her at the moment, but that can change on a regular basis.
So Sry Ella.
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